This paper is in the following e-collection/theme issue:

Technology in Physiotherapy (134) Patient-Reported Outcome Measures (PROMs) (288)

Published on in Vol 5, No 2 (2018): Jul-Dec

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/10099, first published .
Patient-Reported Outcome of Physical Therapy in Amyotrophic Lateral Sclerosis: Observational Online Study

Patient-Reported Outcome of Physical Therapy in Amyotrophic Lateral Sclerosis: Observational Online Study

Patient-Reported Outcome of Physical Therapy in Amyotrophic Lateral Sclerosis: Observational Online Study

Authors of this article:

Robert Meyer1 Author Orcid Image ;   Susanne Spittel1, 2 Author Orcid Image ;   Laura Steinfurth1 Author Orcid Image ;   Andreas Funke1 Author Orcid Image ;   Dagmar Kettemann1 Author Orcid Image ;   Christoph Münch2 Author Orcid Image ;   Thomas Meyer1, 2 Author Orcid Image ;   André Maier1 Author Orcid Image
Article Authors Cited by (26) Tweetations (5) Metrics

Journals

  1. Alismail A, Schaeffer B, Oh A, Hamiduzzaman S, Daher N, Song H, Furukawa B, Tan L. <p>The Use of the Net Promoter Score (NPS) in an Outpatient Allergy and Pulmonary Clinic: An Innovative Look into Using Tablet-Based Tool vs Traditional Survey Method</p>. Patient Related Outcome Measures 2020;Volume 11:137 View
  2. Ueoka K, Kabata T, Kajino Y, Inoue D, Ohmori T, Ueno T, Yoshitani J, Yamamuro Y, Tsuchiya H. Patient-reported outcomes following primary total hip arthroplasty in Crowe type III or IV developmental dysplasia are comparable to those in Crowe type I: a case-control study of 96 hips with intermediate-term follow-up. BMC Musculoskeletal Disorders 2020;21(1) View
  3. Just-Borràs L, Hurtado E, Cilleros-Mañé V, Biondi O, Charbonnier F, Tomàs M, Garcia N, Tomàs J, Lanuza M. Running and swimming prevent the deregulation of the BDNF/TrkB neurotrophic signalling at the neuromuscular junction in mice with amyotrophic lateral sclerosis. Cellular and Molecular Life Sciences 2020;77(15):3027 View
  4. Lanuza M, Just-Borràs L, Hurtado E, Cilleros-Mañé V, Tomàs M, Garcia N, Tomàs J. The Impact of Kinases in Amyotrophic Lateral Sclerosis at the Neuromuscular Synapse: Insights into BDNF/TrkB and PKC Signaling. Cells 2019;8(12):1578 View
  5. Meyer T, Funke A, Münch C, Kettemann D, Maier A, Walter B, Thomas A, Spittel S. Real world experience of patients with amyotrophic lateral sclerosis (ALS) in the treatment of spasticity using tetrahydrocannabinol:cannabidiol (THC:CBD). BMC Neurology 2019;19(1) View
  6. López-Picazo Ferrer J, Vidal-Abarca Gutiérrez I, Beteta Fernández D, López Ibáñez M. Influencia del periodo de alarma por la pandemia covid-19 en la calidad percibida de la atención en urgencias hospitalarias. Journal of Healthcare Quality Research 2021;36(1):19 View
  7. Spittel S, Maier A, Kettemann D, Walter B, Koch B, Krause K, Norden J, Münch C, Meyer T. Non‐invasive and tracheostomy invasive ventilation in amyotrophic lateral sclerosis: Utilization and survival rates in a cohort study over 12 years in Germany. European Journal of Neurology 2021;28(4):1160 View
  8. Fürstenau D, Klein S, Vogel A, Auschra C. Multi-sided platform and data-driven care research. Electronic Markets 2021;31(4):811 View
  9. Lopez-Picazo J, Vidal-Abarca I, Beteta D, López-Ibáñez M, García-Vázquez E. Impact of the COVID-19 Pandemic on the Hospital: Inpatient’s Perceived Quality in Spain. Journal of Patient Experience 2021;8 View
  10. Meyer T, Maier A, Uzelac Z, Hagenacker T, Günther R, Schreiber‐Katz O, Weiler M, Steinbach R, Weyen U, Koch J, Kettemann D, Norden J, Dorst J, Wurster C, Ludolph A, Stolte B, Freigang M, Osmanovic A, Petri S, Grosskreutz J, Rödiger A, Griep R, Gaudlitz M, Walter B, Münch C, Spittel S. Treatment expectations and perception of therapy in adult patients with spinal muscular atrophy receiving nusinersen. European Journal of Neurology 2021;28(8):2582 View
  11. Kolbaşı E, Açıkbaş E, Akşimşek G, Aslan G, Kıyan E. Validity and reliability of the Turkish version of “the Dyspnea-ALS-Scale (DALS-15)”. Neurological Sciences 2022;43(3):1823 View
  12. Ekberg K, Timmer B, Francis A, Hickson L. Improving the implementation of family-centred care in adult audiology appointments: a feasibility intervention study. International Journal of Audiology 2023;62(9):900 View
  13. Beresford L, Norwood T. The Effect of Mobile Care Delivery on Clinically Meaningful Outcomes, Satisfaction, and Engagement Among Physical Therapy Patients: Observational Retrospective Study. JMIR Rehabilitation and Assistive Technologies 2022;9(1):e31349 View
  14. Ali M, Amirthalingam P, Alatawi Y, Aljabri A. Patient Satisfaction of Ambulatory Care Pharmacy Services. Journal of Patient Experience 2022;9 View
  15. Khavandi S, Lim E, Higham A, de Pennington N, Bindra M, Maling S, Adams M, Mole G. User-acceptability of an automated telephone call for post-operative follow-up after uncomplicated cataract surgery. Eye 2023;37(10):2069 View
  16. Maier A, Münch C, Meyer T. Der Einsatz von Patient-reported Outcome Measures (PROM) und die Perspektive digitaler Biomarker bei der Amyotrophen Lateralsklerose. Klinische Neurophysiologie 2023;54(01):28 View
  17. Sznajder J, Barć K, Kuźma-Kozakiewicz M. Low intensity exercise training in patients with amyotrophic lateral sclerosis – factors influencing eligibility and compliance to the clinical trial. Neurological Research 2023;45(8):708 View
  18. Iluț S, Stan A, Rahovan I, Hapca E, Zmaranda I, Strilciuc S, Muresanu D. Variants of Amyotrophic lateral sclerosis and rehabilitation: an overview. Balneo and PRM Research Journal 2023;14(Vol.14, no.2):559 View
  19. Iluț S, Stan A, Rahovan I, Hapca E, Zmaranda I, Strilciuc S, Muresanu D. Variants of Amyotrophic lateral sclerosis and rehabilitation: an overview. Balneo and PRM Research Journal 2023;14(Vol.14, no.2):559 View
  20. Osmanski-Zenk K, Ellenrieder M, Mittelmeier W, Klinder A. Net Promoter Score: a prospective, single-centre observational study assessing if a single question determined treatment success after primary or revision hip arthroplasty. BMC Musculoskeletal Disorders 2023;24(1) View
  21. Hoxhaj P, Hastings N, Kachhadia M, Gupta R, Sindhu U, Durve S, Azam A, Auz Vinueza M, . B, Win S, Rathod D, Afsar A. Exploring Advancements in the Treatment of Amyotrophic Lateral Sclerosis: A Comprehensive Review of Current Modalities and Future Prospects. Cureus 2023 View
  22. Erb M, Calcagno N, Brown R, Burke K, Scheier Z, Iyer A, Clark A, Higgins M, Keegan M, Gupta A, Johnson S, Chew S, Berry J. Longitudinal comparison of the self-administered ALSFRS-RSE and ALSFRS-R as functional outcome measures in ALS. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 2024;25(5-6):570 View
  23. Meyer T, Schumann P, Weydt P, Petri S, Weishaupt J, Weyen U, Koch J, Günther R, Regensburger M, Boentert M, Wiesenfarth M, Koc Y, Kolzarek F, Kettemann D, Norden J, Bernsen S, Elmas Z, Conrad J, Valkadinov I, Vidovic M, Dorst J, Ludolph A, Hesebeck‐Brinckmann J, Spittel S, Münch C, Maier A, Körtvélyessy P. Clinical and patient‐reported outcomes and neurofilament response during tofersen treatment in SOD1‐related ALS—A multicenter observational study over 18 months. Muscle & Nerve 2024;70(3):333 View
  24. Spittel S, Meyer T, Weyen U, Grehl T, Weydt P, Steinbach R, Petri S, Baum P, Metelmann M, Sperfeld A, Kettemann D, Norden J, Rödiger A, Ilse B, Grosskreutz J, Hildebrandt B, Walter B, Münch C, Maier A. User expectations and experiences of an assistive robotic arm in amyotrophic lateral sclerosis: a multicenter observational study. Neurological Research and Practice 2024;6(1) View

Books/Policy Documents

  1. Altilio T, Otis-Green S, Cagle J, Mintz J. The Oxford Textbook of Palliative Social Work. View
  2. Weydt P, Bernsen S. ELSEVIER ESSENTIALS ALS und andere Motoneuronerkrankungen. View